Anti-viral medication
I am so very annoyed!!
Due to Daisy having CMV, Which caused her to have the hearing loss. There is a anti-viral medicine that babies can have who have CMV before their 4 weeks old. With Daisy not being diagnosed with CMV until 6 weeks, we was way out of the time bracket!
This medicine can't cure the infection, but it can slow its progress and limit the possibility of serious damage.
Ganciclovir is an antiviral medicine often used to treat CMV. An oral form called valganciclovir is often used. However, it can't be prescribed during pregnancy.
Ganciclovir can cause several side effects, the main one being bone marrow suppression. Bone marrow is the spongy material at the centre of some bones. It produces the stem cells that produce blood cells and platelets.
Suppressed bone marrow can lead to a low white blood cell count, which increases the risk of serious bacterial infection. Low levels of platelets can cause increased bleeding, and a lack of red blood cells can cause anaemia which may lead to severe tiredness.
A baby born with congenital CMV may need to stay in hospital until their normal organ function returns. They will also need to stay in hospital if they're being treated with the antiviral medicine ganciclovir, at least when treatment is first started.
Once the baby is well enough to go home, the course of treatment can be completed with valganciclovir. In many cases, valganciclovir can be given from the start of the treatment.
Your baby should also have regular hearing and eye tests to check for any problems.
2nd April 2017
I got a phone call today off our consultant at stoke. He was letting me know that the anti-viral is ready to be picked up at Stafford hospital.
I explained to him that I wasn't happy about giving daisy the medication. He then explained that I didn't have to start the treatment until I had spoken to Dr Hackett. I will be seeing him either Thursday/Friday this week or the following week. So hopefully we have some answers to why he wants to start the treatment.
Due to Daisy having CMV, Which caused her to have the hearing loss. There is a anti-viral medicine that babies can have who have CMV before their 4 weeks old. With Daisy not being diagnosed with CMV until 6 weeks, we was way out of the time bracket!
This medicine can't cure the infection, but it can slow its progress and limit the possibility of serious damage.
Ganciclovir is an antiviral medicine often used to treat CMV. An oral form called valganciclovir is often used. However, it can't be prescribed during pregnancy.
Ganciclovir can cause several side effects, the main one being bone marrow suppression. Bone marrow is the spongy material at the centre of some bones. It produces the stem cells that produce blood cells and platelets.
Suppressed bone marrow can lead to a low white blood cell count, which increases the risk of serious bacterial infection. Low levels of platelets can cause increased bleeding, and a lack of red blood cells can cause anaemia which may lead to severe tiredness.
A baby born with congenital CMV may need to stay in hospital until their normal organ function returns. They will also need to stay in hospital if they're being treated with the antiviral medicine ganciclovir, at least when treatment is first started.
Once the baby is well enough to go home, the course of treatment can be completed with valganciclovir. In many cases, valganciclovir can be given from the start of the treatment.
Your baby should also have regular hearing and eye tests to check for any problems.
29th march 2017
9:15am I got a phone call off our consultant at stoke, telling me that the heel prick test they did nearly 2 weeks ago, had come back and its been confirmed by blood that Daisy has CMV! we already knew this as we did a urine sample from daisy at 6 weeks old. So not to sure why they wanted to do another sample.
He then went onto telling me that he had spoken to Dr Hackett who is specialised in disease's. He has told our consultant in stoke that he wants to start daisy on the anti-viral medicine. It is a 6 months course and we will have to go every wednesday for blood tests for 4 weeks and then every 2 weeks.
He then went onto telling me that he had spoken to Dr Hackett who is specialised in disease's. He has told our consultant in stoke that he wants to start daisy on the anti-viral medicine. It is a 6 months course and we will have to go every wednesday for blood tests for 4 weeks and then every 2 weeks.
I'm really concerned as there is side effects to this medicine.
The most common side effect of anti-viral treatment is a decrease in the number of white blood cells that help fight infection. Around one in five babies will experience this side effect, most commonly in the first few weeks after starting anti-viral treatment. Less commonly, anti-viral treatment may cause a reduction in the number of platelets in the blood (the cells that help the blood clot). The liver can also be affected in some cases. Blood tests are required to closely monitor the blood cells and function of the liver. If these side-effects do happen, then anti-viral medication may have to be stopped for a while.
The most common side effect of anti-viral treatment is a decrease in the number of white blood cells that help fight infection. Around one in five babies will experience this side effect, most commonly in the first few weeks after starting anti-viral treatment. Less commonly, anti-viral treatment may cause a reduction in the number of platelets in the blood (the cells that help the blood clot). The liver can also be affected in some cases. Blood tests are required to closely monitor the blood cells and function of the liver. If these side-effects do happen, then anti-viral medication may have to be stopped for a while.
Do I put my baby through this, and potentially get ill?
Am I bad mum if I don't give her the anti-viral medication?
Will this put the cochlear implants operation on hold until after 6 months?
so many questions that need answers. I wont be giving daisy any medication until I have the full facts to why they want to give it her so later on than normal.
I honestly feel sick in the pit of my stomach. my heart breaks for her everyday.
I catch myself staring into space thinking, I wonder what daisy will be like in 5 years time?
Will she like the way she is? Will she hate me for this?
the list is endless.
Am I bad mum if I don't give her the anti-viral medication?
Will this put the cochlear implants operation on hold until after 6 months?
so many questions that need answers. I wont be giving daisy any medication until I have the full facts to why they want to give it her so later on than normal.
I honestly feel sick in the pit of my stomach. my heart breaks for her everyday.
I catch myself staring into space thinking, I wonder what daisy will be like in 5 years time?
Will she like the way she is? Will she hate me for this?
the list is endless.
Its definitely hard. I'm just hoping to have some good news soon, instead of just bad new.
I got a phone call today off our consultant at stoke. He was letting me know that the anti-viral is ready to be picked up at Stafford hospital.
I explained to him that I wasn't happy about giving daisy the medication. He then explained that I didn't have to start the treatment until I had spoken to Dr Hackett. I will be seeing him either Thursday/Friday this week or the following week. So hopefully we have some answers to why he wants to start the treatment.
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