14 days post op

Daisy is doing so well! I don’t know what I was expecting but I didn’t expect her to bounce  back so quickly after a operation like that. 
The first weeks she was very groggy and was all mummy but I must admit she did really well considering it was her 3rd night back at the new Home after her operation. 
Every little touch to her head would hurt her, but for some reason she’s still try and crawl and fail and hit her head and do it again and again and again. 
Daisy had 2 plasters that was covering her stitches, one was half off and daisy thought it would be a good idea to yank it off! I couldn’t believe she did it and didn’t even cry!  The second plaster only came off 2 days ago. Thankfully she didn’t pull this one off, bathing it in water and gentle taking it off was the trick. 
The scars are so neat and tidy. It’s incredible what doctors can do these days. 
I do try and get a picture of her scars but her hair covers as they hardly shaved it (YAY). so every picture I get, it’s not very clear. I will try maybe when she’s sleeping. 

Only 2 more weeks until activation day and we can’t wait! The day we have all been waiting for the day our little girl hears the world! 
Me and brad was talking earlier and we thought Daisy doesn’t even know her name is daisy. When you think of things like that it’s horrible. Because a 9 month old knows there name by then. Daisy is going to be 10 months behind in her development with speech and language. But she might even prove us wrong and be very clever! Time will soon tell. 

Daisy has a follow up eye appointment again in a weeks time. Hoping that the eyes are still perfect and her vision isn’t starting to go. But to be honest Daisy has eyes in the back of her head, she doesn’t miss a trick out Daisy doesn’t. 
Soon moves her head to any movements.

We’ve also been booked in for an ECG over at county hospital. 
This is to determine that is not genetic which we know it’s not and that it is down to the cmv which we also know it is. But we need to do these tests to tick the boxes. 

It’s been a hard few months but we’re finally here and the end is very near. Still lots of appointments but the hard bit is done and I’m very thankful for all the doctors and nurses that have looked after Daisy and us. They really do, do a great job and I appreciate everything they do in such long hours.


 
 
 

Comments

Post a Comment

Popular posts from this blog

More complications...

Just as we thought we had sorted Daisy's hearing out, a few weeks later Daisy experienced the same problem again with the left ear. She could not tolerate the sound again! We thought it was very weird as she was on much lower sound and she was fine. As I was at work when brad told me what had happened, I made a few phone calls. My mum was able to ring the doctors and get her an appointment with them at 11am while I was ringing up Rope walk house to get there advise on it again. But with us currently being in a pandemic and lockdown! We couldn't get to Nottingham. As I was explaining it all to Kim, that it was exactly the same thing again. she told me to ring her back after she had been to her doctors appointment. So I waited.. worried sick while being at work, couldn't leave but to be honest I knew there wasn't much I could do as I cant go no where and she was in the best hands with my Dad. Attended the doctors appointment, They said there was still abit of wax in there...
Read more ...

Problems with the cochlear

Image
Sat at home in tears... Daisy has woken up not being able to tolerate her left cochlear, she screaming out in pain and saying its hurting! As you can imagine worst feeling for us as parents as we've never been told this would or could happen.  First thing I did was ring the doctors so they could check in her ear to see if there  was possible ear infection. Once booked the appointment I message Donna and Victoria and straight on the phone to Nottingham Rope Walk House. Where they advised that I should go to her doctors appointment check behind the hear and get the doctor to ring queens while we was there and see what they advise us to do next. Sat in the doctors worried what was going to happen. Will she need it taking out? What sound is she hearing? like what the hell is going on!!! Deep breathe Emily... Doctor checked both ears and they said there was a lot of wax but didn't suspect an ear infection. Rang Nottingham and they advised us to go...
Read more ...

Nursery

Image
Sooo.. Its been a while since ive been on here!! As you can imagine with now having a 3 year old Daisy and a 5 year Amelia-Lily, and a full time job. I had no time to be able to write. There has been a few times where I wanted to write down my thoughts but after 2 years i've finally picked up my laptop and thought id give you all an insight on how the last 2 years have been us. So I think I left off last time with Daisy starting school in the February? Well.. First day at school was emotional for us all, our last baby going off to school is hard enough but Daisy being special was an even more worry. The thoughts of how will she settle in? Will the kids rip off her cochlears? Will they ignore her and leave her out? the thoughts were endless... Dropped her off holding back the tears and Daisy was super excited as she had her own little uniform that matched her sisters and massive back pack full of all the thing i thought shed need in the 3 hours she was there! We left her crying but...
Read more ...